Shake, rattle, roll. A Parkinsons Update.

S

People often inquire how I’m going with my Parkinsons, so I thought I’d provide an update…

Over the last few months I have deteriorated a bit. I take meds every 3.5 hours. When they have fully kicked in I move freely, but as they’re kicking in or wearing off my muscles stiffen and my hands tremor, sometimes wildly, and I shuffle about the house like an old man on speed. Some days the meds kick in very quickly, other days quite slowly. At these times it’s the little things for which I need fine motor skills that prove challenging.

…buttoning my sleeves
…turning down my collar
…typing a text message into my phone
…holding a full cup of coffee without spilling some
…turning over in bed

I’ve had some strange adventures on facebook. My tremoring hand will sometimes go into a kind of rapid-fire mode and as it moves erratically across a page has seen me inadvertently open dozens of photos at once, hit ‘like’ buttons I never intended to hit, and accept rather than decline some dubious friend requests. The same dynamic sees me quite regularly hit the ‘end call’ button on my phone while trying to answer it, and hit send on half-completed texts.

I no longer drive long distances and drive locally only when my meds have kicked in. I am pretty useless for chores while the meds are kicking in or wearing off.

At the end of the day most of these things are nuisances that slow me down but haven’t stopped me from doing too many things. Through it all I remain surrounded by faith, hope and love; blessed by a wife who never ceases to amaze me with her generosity and grace. Life is good.

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George NimbalkerSuzanne Scott GoodallSandy HigginsAndris Heksallan Recent comment authors
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Jeanette Mathews
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Jeanette Mathews

The “related post” that comes up with yours is Bill Haley and the Comets. You are in good company and just as inspiring!

David Kowalski
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Astrid Elliman
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Astrid Elliman

Love your attitude and it reminds me of what matters most in life and surrounded by Faith, Hope and Love is central to it…peace brother!

Luke Norman
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Luke Norman

Thanks for the update, Scott. It’d be great to catch up some time soon.

DouginCanberra
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RT @scottjhiggins: Shake, rattle, roll. A Parkinsons Update.: https://t.co/0znqAPvWbi

Living Liminal
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I can’t begin to imagine how frustrating life must be for you! Just want you to know how much I value the insights you share on your blog.

Ruth Lucas
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Ruth Lucas

I can’t begin to imagine how frustrating life must be for you! Just want you to know how much I value the insights you share on your blog.

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Cathie Howard
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Cathie Howard

???? ????

Robert Howie VII
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Robert Howie VII

Pretty sure I’m reading this right. Collard shirts are bad for your health. Every day is t-shirt and shorts day. Dr Howie says so.

Sandy Higgins
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Sandy Higgins

My wonderful man! Your generosity, optimism, joy, faith inspires me every day!! We make a great team! ❤️

Cathie Howard
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Cathie Howard

❤️ of course I don’t know him anything like you do Sandy, but I left BWAA three years ago and still think of this open hearted, deep thinking, kind and empathetic man, with fondness. God bless you both and the children.

Sandy Higgins
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Sandy Higgins

Thankyou Cathie. He is just that! ????

Sandy Higgins
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Sandy Higgins

Thankyou Cathie! and yes that he is! ????

Sandy Higgins
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Sandy Higgins

Oops sent that reply twice Lol! Thought first reply didn’t send! A true Luddite ????

Michael Howorth
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Michael Howorth

Dear Elvis – your faith and optimism are inspiring. Any chance of a Sydney home group meeting?

Scott Higgins
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Scott Higgins

I think a home group meeting is demanded. I’ll send through some possible dates

Michael Howorth
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Michael Howorth

Great. Looking forward to it.

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Geoff Broughton
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Geoff Broughton

I needed to read this today, thanks Scott.

Lindsay Cullen
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Lindsay Cullen

Thanks for the update Scott. Keep up your fantastic work and thoughtful commentary. You are in my prayers.

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Ross Coleman
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Ross Coleman

Wow

Robin Carter
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Robin Carter

You are an amazing inspiration Scott Higgins

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allan
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allan

I agree with all these comments, Scott. Shalom!

Andris Heks
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Andris Heks

May Love continue to empower you to handle whatever challenges Parkinson pauses.
God bless,
Andris

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